From Diagnosis to Care: Lived Experiences of Family Caregivers of Patients with Newly Diagnosed Metastatic Cancer

Cancer presents a major public health concern, worldwide withmetastatic cancer being particularly alarming due to its association to cancer-related mortality. The burden of cancer is increasing in LMICs like India, particularly in Kerala, the southernmost state renowned for its remarkable healthcare achievements and high health index rankings. Despite Kerala’s reputation for healthcare, it records the highest crude cancer incidence rate in the country, placing increasing pressure on its healthcare services. Family caregivers play a vital role in supporting patients during this period of distress; however, their psychosocial needs are often overlooked. This study adopts a descriptive qualitative approach to explore the experiences of family caregivers of patients newly diagnosed with metastatic cancer. Eight family caregivers were recruited from a cancer care center in Kerala that supports both patients and caregivers. In-depth interviews were conducted by trained social work students under the supervision of the research team. The analysis generated five major themes describing caregivers’ journey: the initial diagnosis; factors shaping their caregiving role; their evolving responsibilities; challenges encountered, and available support systems. The study findings underscore the need for evidence-based practices and policies that address the holistic needs enhancing health outcomes for both caregivers and patients.